Update- it’s not over

“There comes a time in every woman’s life when the only thing that helps is a glass of champagne.” –Bette Davis, American film and theater actress

With the end of chemotherapy I really wanted to get back to normality. I felt bad leaving my work colleagues to cover for me. My family to take care of me. My friends to be my constant support.

With all the bad things of chemotherapy I could not have fared as well as I did with out the love and caring of my family and friends. I am eternally appreciative to them.

However the journey is not over. After my last treatment (I’m sure you have seen pictures on instagram) and the celebration after, the follow up CT scan revealed some lymph nodes that had grown.

Now it could have been all the poison from the chemo, or the unsettling still from the surgery. But further CT scans, and blood tests supported the fact that the cancer is still inside me. Tough disease to survive through the surgery and two types of hefty poison.

My oncologist said when dealing with cancer you have several ways to fight it.

  1. You cut it out.
  2. You starve it.
  3. You poison it.
  4. You burn it.

I’ve done two of the four. Unfortunately clear cell cancer is not fed by hormones so there is no way of starving it. After a PET scan, the Radiology team decided the new cancerous lymph nodes were just too big to burn. My oncologist had another suggestion. A novel therapy. Essentially, letting my own body fight the disease for me.

Dr. Nicum, Dr. Roux and the Oncology team at Oxford’s Churchill Hospital reached out to their colleagues across the UK and found some Immunotherapy Trials for me to participate in.

Long story short I was introduced to Dr. Rebecca Kristeleit at UCLH Macmillan Cancer Centre and she invited me to participate in PEACOCC, A phase II study of PEmbrolizumab in patients with Advanced gynaeCOlogical Clear cell Cancer.

Never miss an opportunity to drink something that sparkles!

So the journey begins again. For the next two years I will be travelling to London twice every three weeks for Immunotherapy treatment. I’ll post what I can and go back and fill in some highlights (if you can call them that) and important moments from my Chemotherapy.